Friday, December 12, 2014

Weekend Links 5/12/14

Life
What do Do When You Are Waiting for the Sunrise
The Manager in My Home & the Five Words that Changed Everything

Special Needs 
The Vestibular Sense: How It Affects Child Development 
What is low muscle tone and how will it impact my child?

And a few pics of Clara from the week. . .

We watch a Baby Einstein show as we eat breakfast each morning (note highchair in the background). Clara pretty much goes C.R.A.Z.Y. during the intro. Every. Single. Time. I may or may not replay the intro five times in a row just to see her smile & hear her adorable giggles.




A big thanks to my friend, Lindsey, who surprised us and dropped off some used toys that her girls are no longer using. To say that Clara is enjoying the Crocodile Xylophone is an understatement!



And for the first time ever, I tried the half up half down do with the curly hair. A little hard to see here, but I think it turned out pretty cute! (Ok, so I need to work on making the part a little more even, ha!)



The weekend is here!!

Monday, December 8, 2014

Family visit with Santa

We took the girls to see Santa the Friday after Thanksgiving. I was actually quite impressed with the backdrop and how legit Santa looked. 

See below. . . 

Yet what you don't see here is Camille screaming from the top of her lungs approximately two seconds after we placed her on Santa's lap. Drama mama did not disappoint. After several attempts that resulted in continuous screaming from Camille, and Clara crying due to Camille's screaming, we decided it best we hop in the picture and call it a day. Our presence seemed to calm both girls rather quickly, but I can't help but laugh at the way Santa is looking at Camille, and Camille at Santa. 


But overall a cute first Santa photo for Camille's baby book, so I'll call it a win.

Merry Christmas!

Friday, December 5, 2014

Weekend Links 12/5/14

Life
True Courage Requires Trust 
When the size of your house is cramping the size of your hospitality - So much truth!!!

Special Needs
Interview with Carol Kranowitz, author of The Out-of-Synch Child - "If they are oversensitive to touch sensations (tactile defensiveness), they will avoid touching and being touched and will shy away from messy play, physical contact with others, pets, certain textures of fabric, many foods, bumpy sock seams, etc. . . When children are hyper-responsive (over-responsive) to sensations, they will be "sensory defensive" -- on alert and ever vigilant to protect themselves from real or imagined hazards in a scary and confusing world." - This is sweet Clara's struggle. We must work through tactile defensiveness each and every day, multiple times a day. More on this topic to come, if I can find the words. . . 

Y'all. . . this girl right here. . . eyes on her at all times. ALL TIMES. Let's see. . . this week I have caught her with a tiny broken Christmas bulb and realized she was EATING the glass (that was not a typo. . . she was fine thank goodness, but seriously.), her hands up to elbows in the toilet, her hands in the fireplace grabbing and eating the rocks/soot WHILE THE FIREPLACE WAS ON, chewing and then gagging on leaves so much that she spit up chunky looking stuff, and below. . . pulled out all the tupperware in about two seconds and broke a glass pyrex. See what I mean??? Game on 24/7.



She seems so innocent. Looks can fool.

This girl was not sure about the big bow I put in her hair. Honestly, I am not so sure either. Sorry Clara, mommy is learning.

On the same day as above picture she did not nap (thanks to school and then therapy immediately after) and so she feel asleep on the floor, just like this, at 6:50pm. We moved her to bed and she slept until 6am. Tired girl!

Happy Friday! 

Thursday, December 4, 2014

Chicken for Cohen Syndrome. . . Spirit Night pictures

A huge thank you to everyone who participated in our Cohen Syndrome Awareness Spirit Night fundraiser on November 21st. We are still BLOWN AWAY by the turn out, and especially all of the love and support that was shown our entire family. With your help, we raised over $1,000 for the Cohen Syndrome Association (and personal donations keep coming in, so this number continues to grow)! Words really cannot describe how appreciative we are for all of you. 

Thank you for loving. 

Thank you for caring.

Thank you for your presence which said "I've got your back. Together we can do this."

And for those of you who could not make it in person . . . all your thoughts, prayers, calls, emails, and texts. . . yep, same message.

Thank you for celebrating our little super heroes.





















































































And later at home. . . still on a high from her super fun night. . . 



We love you all!!